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Troy, MI
The ADLD Center raises awareness, supports research, and provides a community for those affected by the rare genetic disease ADLD.
$125,641
12-month Total
10
Donors
0
Active Projects
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Autosomal Dominant Leukodystrophy (ADLD) is a rare, genetic disease that causes symptoms similar to multiple sclerosis (MS) e.g., paralysis, speech impairment, bowel dysfunction, etc. ADLD is a fatal disease that slowly progresses - patients often suffer from the disease for several decades after onset.
The mission of the ADLD Center (www.adld.center) is to support research into various aspects of Autosomal Dominant Leukodystrophy. We aim to focus on facilitating research on how the disease works, as well as potential therapies, while helping create a support network to disseminate relevant and helpful information for patients and their families.
Our Work Includes:
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In 2025, we
These achievements, bolstered by the addition of four new board members and a new research grant, have transitioned us from simply understanding ADLD to actively treating it.
Our progress has set the stage for an even more ambitious 2026. Our primary scientific goals include
To achieve this, we have set a fundraising goal of $550,000. These funds are critical to sustaining our scientific team, continuing the Natural History Study, and ensuring we have the regulatory support needed to bring new treatments to our community.
Updates from ADLD Center’s efforts, posted on a regular basis.
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